The West Sussex South Branch was launched in 1985 by Len and Peggy Betterton, whose son had died of MND at the age of 31. Starting with a grant of £100 from the Association’s National Office the branch has gone from strength to strength and now spends over £30,000 each year on care and support for people in this part of West Sussex.
In 2005, using a generous legacy, the branch funded a 3 year pioneering accessible respiratory support service for people with MND. This is now being funded, managed and enlarged by NHS Trust.
As part of the MND Association ‘family’ of over 90 nation wide branches and groups, West Sussex South has always been keen to play its part nationally. Over the years four of its enthusiastic members have been elected to the Association’s board of trustees.