WEST SUSSEX SOUTH
WEST SUSSEX SOUTH
A welcoming ‘can do’ group
The West Sussex South Branch offers dedicated support to families living with MND in this area
The West Sussex South Branch was launched in 1985 by Len and Peggy Betterton, whose son had died of MND at the age of 31. Starting with a grant of £100 from the Association’s National Office the branch has gone from strength to strength and now spends over £30,000 each year on care and support for people in this part of West Sussex.
In 2005, using a generous legacy, the branch funded a 3 year pioneering accessible respiratory support service for people with MND. This is now being funded, managed and enlarged by NHS Trust.
As part of the MND Association ‘family’ of over 90 nation wide branches and groups, West Sussex South has always been keen to play its part nationally. Over the years four of its enthusiastic members have been elected to the Association’s board of trustees.
What exactly do we do?
Raise funds to provide specialised equipment not available form other sources
Offer grants towards holidays or transport costs which help improve quality of life
Raise awareness of MND among the public, politicians, local health and social care providers and professionals
Invest in research to find effective treatments and an eventual cure
Host a busy events schedule to help fund-raise and holds open meetings regularly
We are totally committed to the Association’s vision of A world free of MND
Come and join us
This thriving branch is run entirely by local volunteers and is always on the lookout for people with new ideas and energy. There are so many different ways to become involved.
Depending on the time you have available and what you are most interested in there will almost certainly be a way for YOU to make a difference for people living with MND.
We hold regular Branch meetings at the Laurels Community Centre in Rustington which you are welcome to attend – and a great way to find out more about us. Please check the events section for dates of our next meeting.
Helping families make the most out of life
We’re not just here to help families come to terms with the changes happening around them, but offer practical assistance to ensure a better quality of life together.