MNDA West Sussex South Branch News
Dr Andrew Barritt, a Neurology Registrar and Clinical Research Fellow within the Clinical Imaging Sciences Centre at Brighton and Sussex Medical School, will be cycling from London to Paris in July in aid of the Motor Neurone Disease Association. His doctoral research project with Professor Nigel Leigh involves performing detailed MRI brain scans in patients with MND to better understand the mechanisms by which cells are affected and how they succumb in this incurable and rapidly fatal neurodegenerative condition.
He would be most grateful for your support through his fundraising page at https://www.justgiving.com/fundraising/andrew-barritt in order to help the MNDA to continue its vital research into effective treatments.
I am pleased to announce that, at our AGM on 23rd April, we elected two new chairmen, who will share the post for a trial year.
Sandy Barrett, our visitor coordinator, will take over the everyday running of the branch and Jo Stimson, a previous vice chair and business woman, will provide support and new ideas. We wish them both every success in their new posts.
Brian Dickie, Director of Research Development for the Association, gave a very encouraging and enlightening talk on the latest developments in research.
I should like to thank everyone for all your support over my 8 year stint as chair.
The MND Association is saddened to learn the death of Professor Stephen Hawking, Patron since 2008. Our thoughts are with Professor Hawking’s family. Throughout his inspirational life Professor Hawking played a vital role in raising awareness of motor neurone disease around the world.
The Autumn Quiz attracted 92 people this year and was again at the Aldingbourne Sports and Social Centre. Lin and Matthew Crompton were again wonderful quizmasters, the fish and chips were provided, as always, by Royals in Bognor Regis and a generous raffle helped to raise the total raised to £690.
We hope to see all our supporters at the branch Christmas meeting on 27th November, where the Sundown Ukulele Band will be entertaining us and refreshments will be served.
As you will have seen, we've had a busy Summer in the branch with several fundraising events including the Hollywood Ball in July, craft stalls at the Hotham Park Country Fair and Pagham on Parade and fantastic results from people running marathons and taking part in cycling events (see the Newsletter) Autumn is now upon us and we have the Autumn Quiz on November 11th to look forward to. If anyone is planning any other fundraising events, please let me know so that we can publicise them.
Unfortunately, I shall be standing down as branch chair at the next AGM in April. We are looking for someone with a passion to help people living with MND to take on this rewarding role and also a Fundraiser to coordinate all the fundraising events that take place in our lively and dedicated branch. Please contact me for job descriptions and other information if you feel that you could be that person! I look forward to hearing from you.
We were very privileged to have Sally Light, Chief Executive of MNDA as our guest for the day on Monday, 24th April. Sally visited several people living with MND and, at a special lunch, awarded an Extra Mile Award to Sandra Holden, one of our MND nurses.
In the evening she attended our AGM and, as well as giving an interesting and inspiring speech, she presented awards to 5 people who had been branch members for 30 years and were all still active in the branch! These were Frances Ramsden, Kitty Mounstephen, Margaret Tester, Helen and Robert Clifford-Jones.
The Christmas branch meeting on 28th November was enhanced by the Melodians Choir, who sang a wonderful selection of Christmas melodies and a delicious buffet with wine and soft drinks. There was also a special raffle, the sale of Christmas cards and two draws for the Thumbs Up Club. A great evening was had by all!